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Hi everyone,
I would like to know if any of you have genetics problems..I for example have a bleeding disorder that has caused me to nearly die twice now and I am 45. My mother has the same problem and the Indian comes from her line…just wondering.
Linda
Dear Quest for Facts,
I’m triracial (African,Native American,
European) and diabetes is common in my
family.2 grandparents,my mother,some aunts and uncles,and 2 1st cousins
had/have it.
To keep whatever I may or may not have inherited at bay,I eat an ovo-lacto
vegetarian diet,take chromium supplements,and run in 5k road races.
Maybe I’ll beat diabetes, but even if I were to develop it,the vegetarian diet would reduce the prospect of vascular and
cardiac complications from diabetes.
Roca
P.S.-My “Indian” is on both sides;Mattaponi on father’s side and Saponi on mother’s side.
Roca,
I am European and Indian my mother is Eastern Siouan what we have is closely related to hemophalia. I was able to have only one child due to the risks associated with bleeding…giving birth nearly bleed me out so……..a joyous and frightening time in my life. ICU is not a pleasant place especially when you can’t see your newborn child.
Linda
Dear Quest (Linda),
You’ve had some rough times;I’m praying you’re in better health now.
Looks like I may’ve misinterpreted this thread!I thought you were doing a demographic and trying to figure out which diseases and conditions people of
NA strain might be more prone to.That was why I mentioned my family’s diabetes.
But I guess you wanted to focus more on the individual.If that’s the issue,
I apologize 🙁 If I’m wrong about the thrust of this thread,I apologize also.
Roca
Also would like to bring up the Sicle Cell disorder amongs African Decendents is also a factor in our mixed blood. Oh and something we dont think about, and the only reason I briing it up is because I recently found out that I have this problem is Thyroid conditions, for both men and woman, Hypo and Hyper thyroid can effect bleeding. Many people dont know they have hyper or Hypo Thyroid until they think they are going crazy, or in my case (sorry if any Men are reading this) I had a moon for 2 months, before I was tested.
I will put some prayers out for you and pray for protection for you and your family
Dear Linda, Roca and Mrspatino,
I have blood clotting problems which surfaced after birth of my first child. I have Saponi and Tuscarora blood and I don’t know of anyone else in my family with this problem but there has been an awful lot of cancer that has taken the lives of my mother’s (mother) side of the family including my mom. My mother’s father (Tuscaroran) died at age 110 still in his right mind and very healthy. He did not smoke or drink and he eating habits were very healthy.
If anyone know of specific health problems that may be Native American specific please let me know.
Well I furiously look for American Indian Blood disorders on every medical site imaginable, I did find information on Thrombophilia/V Leiden, but it is mainly a desease that seems to genetically carry from, Northern Europeans and some Arab cultures. I have known a few people with this condition but cant really say if it is a native derived thing. There is sooo much about this disorder on the internet that, I can not say there was one site that was good because everything was briefed. The information I did see based on race was scarce, I did run across something along the lines of a Raise in cases amongst Latinos, and latinos or at least in the cases of Mexican, Puerto Rican and South American decendents, do have a high Indigenous Blood quantum. But from what I have heard about this condition, is that it is still being researched regularly. Another resource for you would be to contact American Indian Health and Family Sevices, I am not sure of the area in which you live but here is a list of tribal numbers for Indian Health Services and you could probably get intouch with someone who can get you the proper information, if anyone knows it will be IHS.
Catawba Indian Nation of South Carolina
P .O. Box 188
Catawba, SC 29704
Overnight Delivery:
996 Avenue of the Nation
Rock Hill, SC 29730
Name, Title Phone # FAX # Email
Mr. Gilbert Blue, Tribal Chief 803-366-4792 803-366-9150 donnabcurtis@yahoo.com
CAPT Diane Carnes,
Health Systems Administrator 803-366-4792 803-366-3398 Diane.Carnes@ihs.hhs.gov
Cayuga Nation of Indians
P. O. Box 11
Versailles, NY 14168
Overnight Delivery:
24 East Main Street
Gowanda, NY 14070
Name, Title Phone # FAX # Email
Mr. Clint Halftown, Heron Clan Representative 716-532-4847 716-532-5417 clinth@buffnet.net
Ms. Sharon Leroy, Secretary
Mr. Marty Wheeler, Health Center Contact anitath@adelphia.net
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Eastern Band of Cherokee Indians
P. O. Box 455
Cherokee, NC 28719
Overnight Delivery: 88 Council House Loop
Name, Title Phone # FAX # Email
Mr. Michell Hicks, Principal Chief 828-497-2771 828-497-7007 michhick@nc-cherokee.com
Cherokee Health Delivery System
P. O. Box 666
Cherokee, NC 28719
Overnight Delivery: John Crowe Hill
Name, Title Phone # FAX # Email
Ms. Susan Leading Fox, Acting Executive Director 828-497-7460 828-497-7459
Ms. Jody Adams, Health Operations Manager
Cherokee Hospital Authority
Hospital Road
Cherokee, NC 28719
Overnight Delivery: Caller Box C268
Name, Title Phone # FAX # Email
Mr. Casey Cooper,
Health System Administrator 828-497-9163 x201 828-497-5343 Casey.Cooper@ihs.hhs.gov
Cherokee Technical Support Center
(Unity Staff)
P. O. Box 429
Cherokee, NC 28719
Overnight Delivery:
Butler Building, Rt. 1
Sequoyah Trail, Highway 441 North
Name, Title Phone # FAX # Email
MAIN Office 828-497-5030 828-497-5104
I really hope this helps.
I got this info from the BAMA BIA
HEALTH
HOW CAN YOU REACH US
Call or Contact
Gwendolyn Lipscomb, Director
Julia Hayes, Assistant Director
Office of Primary Care & Rural Health
Alabama Department of Public Health
RSA Tower, Suite 710
Montgomery, AL 36130-3017
Phone: (334) 206-5396
Or
1-800-255-1992
ALABAMA DEPARTMENT OF PUBLIC HEALTH
Health information concerning Native Americans
http://www.adph.org/minorityhealth
UNITED STATES DEPARTMENT OF
HUMAN and HEALTH SERVICES
Health information concerning Native Americans
http://www.healthfinder.gov/justforyou
http://americanindianhealth.nlm.nih.gov
For some Reason Indian Health Services diectory is acting wacky, but everyone who lives in IHS Nashville Sevice area for the Southern States should print the numbers I provided, if you dont already have them. I believe Native Mexican people can also use IHS services. But you can get good and decent Health care if you can find a location I know I use to work for IHS in Detroit!
This is also an excelent alternative everyones families if you are unable to get Health Insurance!
Thank you very much for your help……doctors have diagnoised what I have as Von Willebrand disease…I have type 1 that is the lest severe… I guess if you have to have this…..type 1 is best ( sorry men) but a word to you ladies if you have heavy menstrual bleeding you may have Von Willibrand type 1 and it can cause severe amenia to the point it causes your heart rate to increase to dangerous levels but the good thing is since your blood will not clot properly the chances of getting clots in your heart and having heart attacks is slim to none. LInda
Quest,
I was just browsing the internet and I ran across this website:
http://www.schs.state.nc.us/SCHS/pdf/AIFACTS.pdf
It has several pages of good info about illnesses that affect Native Americans. The fact sheets heading is North Carolina Minority Health Facts- American Indians
Maybe you can get some answers here.
Jade
Dear Quest….I just noticed this thread and read down to your diagnosis. I too have Von Willebrand’s disease, and so does one of my daughters. You have to take a clotting agent before surgery, and then things go OK.
Lynne
Lynne,
The last time I had surgery they gave me a clotting agent and all was well but when I had my son we were not aware of my Von Willibrand’s. So I nearly bleed to death. He ruptured the placenta when I was 27 weeks pregnant and I would not stop bleeding. The doctor told me if I did not allow him to deliver my child prematurely then we both would die. So my child was born 13 weeks early and weighed 2lbs 1 oz. He made it!!!! And today he is Who’s Who Among American High School students…he is 16. A big boy with brown hair and gray eyes. And I am seriously proud of him. He does not have Von Willibrand thank the good Lord. You and I should get together and talk cause…you live in North Carolina, right? I live in south Alabama but most of my family is in North Carolina. I have so many surnames in my line that i am just now learning about. Also I just found out that the Lost Colony has two surnames that connect to us they are Bright and Little. I know there are Bright’s on the Cherokee rolls and my great grandmother was a Little on my father’s side. The Bright name is on my mother’s side. If I remember correctly the Little’s were from Hyde county which is on the coast. I have lived in Edgecombe and Nash counties just south of Halifax. In fact when Halifax county separated from Edgecombe county my family then lived in Halifax county. My mother was born in Halifax county. My grandmother was born in Nash county. She lived in Cooper in the northern part of Nash county near Edgecombe and Halifax counties. Also the surname Bass appears in my mother’s line. We are still searching for the surname of my gg grandmother who married Thomas Etheridge. We know she was an indian because we have family photos and the knowledge has been passed on for generations. But now we have a family dispute because my g grandmother and her sister differs in their stories of their lineage…her sister’s decsendants (my distant cousins) say we are Cherokee. Well we’ve been told we descend from the Eastern Siouian people…go figure. I kinda think we are both. I told my mother all of this and she says well whatever you are YOU ARE 1’/8 Native American and then she adds the other 7/8 are pure white…let it rest. But I can’t just let it rest. I’m rambling on….that’s chat sometime Linda
Glad to hear the boy’s OK and doing you proud.
Also glad to hear that you got a diagnosis, and I’m sorry that you had to go thru a difficult birth to find out. I had a bad birth for my first child, but since it was in a military hospital, they didn’t much care. They left me for hours in a recovery room stuck to the sheets by my own blood…..but enough of those bad memories.
It was an alert pediatrician who discovered my daughter’s Von Willibrand’s, and gave her the clotting agent before some serious ear surgery. Then I was tested. It may be that my younger daughter has it as well. My father probably had it too, judging by the amount of toilet paper stuck to his face every time he shaved….and he didn’t have a heavy beard!
You know, things like this are something that people with native blood should know about. *I didn’t know, my parents didn’t know either. My parents didn’t know why I couldn’t drink milk either. It was a long sad haul to get to the point where I was allowed not to drink milk anymore. The fact that my Dad didn’t drink milk either…just never made the psychic connection with them. They believed that milk was good for you if you were a child, and I was not getting all that I needed….the amount of vomiting seemed just to be peevishness to them…..because they were unaware. Fortunately for my youngest daughter, I was aware that she MIGHT not be able to drink milk, and she had the signs early on that she couldn’t digest it. I am also aware that metabolizing sugar is a problem too. Did you know about that one? Have you ever had any trouble with that? I never liked things that were really sweet, but I paid no attention to it. I have since found out that many NA’s have problems with sugar.
All of these things are just part of genetic drift. They might show up, they might not, they might skip a generation, they might skip around among siblings. But rest assured that they WILL show up sooner or later, in one or another of your family.
Good talking to you, chatting sounds like a good idea. I can only pop in about once every week or so because of time limitations.
Regards,
Lynne
Actually I have a bad bad sweet tooth I’ve never had any problems with sugar or milk and I am not aware of anyone in my family having these problems….yet. My Parental grandmother was a diabetic and one of her children is also. Plus I have a 6 year old neice who is a diabetic. Also arthrisis is in our family (my mother, me, my sister and one of my neices.) I have been looking at the surnames that are in each branch of my family tree and in 3 of the 4 branches(my grandparents families) names that have been indentified as possibly NA are popping up regularly. I know most of my NA comes from my maternal grandmother. My mother and her siblings have a strong NA appearance. My father was a blond thus I am a blond(genetics 🙂 ) but my facial features are just like my mothers and my grandmothers. When I tell someone I am NA most of the time they want to know where I got this blond hair…then of course they then continue by asking the rude question of how much NA blood do you have? I don’t know about anyone else but I think that is a plain rude question why should NA’s have to put up with this when you never hear someone ask someone how much white blood do you have or how much black blood do you have…ok so here I go again jumping on the soapbox 😉 Later on, Linda
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